Share Your Medical Data - IgA Nephropathy

Share Your Medical Data

If we all join together and share our medical data we can almost certainly us this crowd data to improve the health of all.

This is crowd funding with the really valuable stuff that you own, your own medical records.

Here will be a data collection form. You will want to collect as many of your medical files as you can. Especially any lab test results to contribute.

Almost 20 years ago when I first began working on the net sharing my knowledge about IgAN I had a simple form that people filled out to lend their experience to the common good. One family that did so had IgAN in three generations of males in the family. This family became the nexus of research that showed the unequivocal genetic linkage to IgAN. Medical science would still be arguing Nature vs. Nurture were it not for that volunteered data.

I am sure there is much more to be discovered in our collective medical data.

Note: Anyone reading this who knows how to set up a good blog based MySQL database feeding form and would be able to help in this would be most welcome.

Leave a Reply Click here to cancel reply.

This site uses Akismet to reduce spam. Learn how your comment data is processed.

IgA nephropathy usually doesn't cause symptoms in the early stages.

The disease can go unnoticed for decades and is sometimes first suspected when routine tests reveal protein and red blood cells in your urine that can't be seen without a microscope (microscopic hematuria).

Signs and symptoms of IgA nephropathy when kidney function is impaired include:

Cola- or tea-colored urine (caused by red blood cells in the urine)

Repeated episodes of cola- or tea-colored urine, sometimes even visible blood in your urine, usually during or after an upper respiratory or other type of infection

Pain in the side(s) of your back below your ribs (flank)

Foam in the toilet water from protein in your urine

Swelling (edema) in your hands and feet

High blood pressure

When to see a doctor

Make an appointment with your doctor if you notice blood in your urine.

Urinary bleeding may be caused by strenuous exercise, some foods, medications or a urinary tract infection.

But prolonged or repeated bleeding may indicate a serious medical problem and should always be evaluated.

Also see your doctor if your urine is foamy or if you develop sudden swelling in your hands and feet.